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Clinical Adaptation of the Spinal Cord Injury Quality of Life Psychosocial Measures

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This research was funded by from the  and concluded in April, 2020.

The purpose of this study was to validate the items of the Spinal Cord Injury¨C Quality of Life (SCI-QOL) assessment and improve how people use the SCI-QOL scores to describe different levels of social and emotional experiences among individuals living with a spinal cord injury (SCI).

The SCI-QOL assessment measures physical-medical, physical functioning, emotional and social health in people with SCI.

The goal was to develop a tool that health care professionals and individuals with SCI can use to more accurately assess what the impact is on an individual¡¯s well-being and what their social and emotional outcomes are over time as a result of medical care, medications, or treatments received.

Co-principal investigators on this grant were Allen Heinemann, PhD, Director, Center for Rehabilitation Outcomes Research, and Linda Ehrlich-Jones, RN, PhD, Associate Director, Center for Rehabilitation Outcomes Research and Research. 

Publications

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Heinemann AW, Nitsch KP, Gracz K, et al. . Archives of Physical Medicine and Rehabilitation. May 2022;103(5S):S67-S77. doi:10.1016/j.apmr.2021.05.010

Nitsch KP, Stipp K, Gracz K, Ehrlich-Jones L, Graham ID, Heinemann AW. . The Journal of Spinal Cord Medicine. Nov 2021;44(6):940-948. doi:10.1080/10790268.2020.1712893

Heinemann AW, Nitsch KP, Ehrlich-Jones L, et al. . J Contin Educ Health Prof. Spring 2019;39(2):103-111. doi:10.1097/CEH.0000000000000249

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